Status:

COMPLETED

Ketogenic Diet Survey in Patients With McArdle Disease (GSDV)

Lead Sponsor:

Nicoline Løkken

Conditions:

McArdle Disease

Eligibility:

All Genders

18-100 years

Brief Summary

The purpose of this survey is to report experiences with variants of a ketogenic diet in a group of individuals diagnosed with McArdle disease (glycogen storage disease type V). Further more the surve...

Detailed Description

Currently, there is no satisfactory treatment for McArdle disease. The limitation in people with McArdle disease is due to a limited availability of energy in the muscle due to affected carbohydrate m...

Eligibility Criteria

Inclusion

  • Verified GSDV diagnosis

Exclusion

  • Age under 18 years

Key Trial Info

Start Date :

January 10 2021

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

December 1 2022

Estimated Enrollment :

200 Patients enrolled

Trial Details

Trial ID

NCT04694547

Start Date

January 10 2021

End Date

December 1 2022

Last Update

February 13 2023

Active Locations (1)

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Page 1 of 1 (1 locations)

1

Copenhagen Neuromuscular Center, Rigshospitalet

Copenhagen, Denmark