Status:
RECRUITING
Virtual Peer-to-peer Support Programme for Carers of MND
Lead Sponsor:
King's College London
Collaborating Sponsors:
MND Association
Marie Curie Charity
Conditions:
Motor Neuron Disease
Amyotrophic Lateral Sclerosis
Eligibility:
All Genders
18-100 years
Phase:
NA
Brief Summary
Background/scope There is growing recognition that family caregiving is a serious public health issue requiring supportive interventions. Family caregivers play an essential role in sustaining a stabl...
Eligibility Criteria
Inclusion
- age ≥ 18 years;
- family/informal caregiver of an individual with MND living at home who is referred for consideration or receiving any of the following i.e., entering King's clinical staging Stage 4A: nutritional support; or Stage 4B: respiratory support \[51\]:
- assisted ventilation
- cough assist
- gastroscopy and enteral feeding
- able to speak/read English;
- has access to a computer, tablet, or smartphone and the internet (we have the ability to provide loan 4G enabled tablets if required); and
- consents to participation
Exclusion
- 1\. Actively receiving psychiatric/psychologist care identified through self-report.
Key Trial Info
Start Date :
August 15 2022
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
July 31 2025
Estimated Enrollment :
154 Patients enrolled
Trial Details
Trial ID
NCT04695210
Start Date
August 15 2022
End Date
July 31 2025
Last Update
October 22 2024
Active Locations (25)
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1
Bedfordshire Hospitals NHS Foundation Trust
Bedford, United Kingdom, MK42 9DJ
2
Airedale NHS Foundation Trust
Bradford, United Kingdom, BD20 6TD
3
University Hospitals Sussex NHS Foundation Trust
Brighton, United Kingdom, BN2 1DH
4
Pilgrims Hospice
Canterbury, United Kingdom