Status:
COMPLETED
Understanding the Burden of ACC Through the Eyes of Patients
Lead Sponsor:
Ayala Pharmaceuticals, Inc,
Collaborating Sponsors:
Adenoid Cystic Carcinoma Research Foundation
Memorial Sloan Kettering Cancer Center
Conditions:
Adenoid Cystic Carcinoma
Eligibility:
All Genders
18+ years
Brief Summary
This is a comprehensive, cross-sectional study conducted with approximately 40-60 individuals affected by ACC who may know the results of molecular profiling of their tumor. Primary Objectives: * To...
Detailed Description
This is a comprehensive, cross-sectional study conducted with approximately 40-60 individuals affected by ACC who may know the results of molecular profiling of their tumor. Primary Objectives: * To...
Eligibility Criteria
Inclusion
- Participant must be a person diagnosed with ACC who is 18 years or older
- For patients with metastatic disease; watchful waiting or progressive disease, participants must know the results of molecular profiling of their tumor
- Histologically-confirmed diagnosis of ACC with written proof of disease and molecular profile of tumor provided. This can be a note showing genetic diagnosis from a relevant testing laboratory, physician consult notes, a medical record of diagnosis, or any other single piece of documentation that connects your name/the patient's name with ACC.
- Able to read, write and understand English, Hebrew, Arabic, or Russian
- Able to grant informed consent
- Willing to participate in a 45-to-60-minute telephone interview, including follow up questions (if necessary)
Exclusion
- 1\. Inability to meet any of the inclusion criteria
Key Trial Info
Start Date :
January 11 2021
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
August 16 2023
Estimated Enrollment :
46 Patients enrolled
Trial Details
Trial ID
NCT04706845
Start Date
January 11 2021
End Date
August 16 2023
Last Update
September 29 2023
Active Locations (1)
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1
Engage Health
Eagan, Minnesota, United States, 55121