Status:

ACTIVE_NOT_RECRUITING

A Study to Learn About the Long-Term Safety of Higher Doses of Nusinersen (BIIB058) Given as Injections to Participants With Spinal Muscular Atrophy (SMA) Who Took Part in an Earlier Nusinersen Trial (ONWARD)

Lead Sponsor:

Biogen

Conditions:

Muscular Atrophy, Spinal

Eligibility:

All Genders

2+ years

Phase:

PHASE3

Brief Summary

In this study, researchers will learn more about the use of nusinersen (BIIB058) in participants with spinal muscular atrophy (SMA). This study is an extension study and will enroll only those partici...

Detailed Description

The primary objective of this study is to evaluate the long-term safety and tolerability of nusinersen administered intrathecally at higher doses to participants with spinal muscular atrophy (SMA) who...

Eligibility Criteria

Inclusion

  • Key
  • Completed the Day 302 visit in study 232SM203 (NCT04089566) in accordance with the study protocol
  • Key

Exclusion

  • Treatment with another investigational therapy or enrollment in another interventional clinical study
  • Treatment with an approved therapy for SMA after the Day 302 Visit of Study 232SM203 (NCT04089566)
  • NOTE: Other protocol defined Inclusion/Exclusion criteria may apply.

Key Trial Info

Start Date :

April 19 2021

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

July 31 2026

Estimated Enrollment :

115 Patients enrolled

Trial Details

Trial ID

NCT04729907

Start Date

April 19 2021

End Date

July 31 2026

Last Update

February 3 2025

Active Locations (39)

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Page 1 of 10 (39 locations)

1

Stanford University Medical Center

Sacramento, California, United States, 94304

2

Children's Hospital Colorado

Aurora, Colorado, United States, 80045

3

Ann & Robert H. Lurie Children's Hospital of Chicago

Chicago, Illinois, United States, 60611-260

4

The Johns Hopkins Hospital

Baltimore, Maryland, United States, 21205