Status:

COMPLETED

Translation and Validation of a Disease-specific Questionnaire for Hirschsprung's Disease in Danish Patients

Lead Sponsor:

University of Southern Denmark

Collaborating Sponsors:

Odense University Hospital

Conditions:

Hirschsprung Disease

Eligibility:

All Genders

8+ years

Brief Summary

The Hirschsprung and anorectal malformation quality of life (HAQL) questionnaire is a disease-specific quality of life questionnaire with 5 different elements (3 questionnaires for patients (categorie...

Eligibility Criteria

Inclusion

  • Diagnosed with Hirschsprung's Disease between the years 1985-2014
  • Age \> 7 years
  • Good Danish comprehension
  • Signed informed consent

Exclusion

  • Inability to follow the procedures of the study, e.g. due to language problems, severe psychological disorders, dementia, etc.

Key Trial Info

Start Date :

July 1 2020

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

May 15 2021

Estimated Enrollment :

173 Patients enrolled

Trial Details

Trial ID

NCT04730128

Start Date

July 1 2020

End Date

May 15 2021

Last Update

November 9 2022

Active Locations (1)

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Odense University Hospital

Odense, Region Syddanmark, Denmark, 5000