Status:

UNKNOWN

Effects of Delayed Growth on the Quality of Life of Children Treated for a Chronic Disease and Quality of Life Study of Their Parents and Siblings

Lead Sponsor:

Assistance Publique Hopitaux De Marseille

Conditions:

Chronic Disease

Eligibility:

All Genders

8-18 years

Phase:

NA

Brief Summary

Chronic childhood diseases have sometimes strong repercussions on the everyday life of patients and their families, because of strict daily treatment regimens, physical limitation or effects on social...

Detailed Description

Chronic childhood diseases have sometimes strong repercussions on the everyday life of patients and their families, because of strict daily treatment regimens, physical limitation or effects on social...

Eligibility Criteria

Inclusion

  • Age between 8 and 18 years
  • Treated in the multidisciplinary paediatrics department of the Timone Hospital
  • With a chronic disease (ICD10 definition: for at least 3 months in the current year with no curative treatment available)
  • For at least three months
  • Requiring at least two hospital consultations per year
  • Able to complete the questionnaire
  • Able to speak French
  • Child and parental consent

Exclusion

  • Problems understanding the questionnaire (intellectual disability, low French proficiency)
  • No social security coverage

Key Trial Info

Start Date :

July 10 2020

Trial Type :

INTERVENTIONAL

Allocation :

ESTIMATED

End Date :

July 31 2021

Estimated Enrollment :

200 Patients enrolled

Trial Details

Trial ID

NCT04733391

Start Date

July 10 2020

End Date

July 31 2021

Last Update

February 2 2021

Active Locations (1)

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Assistance Publique Hopitaux de Marseille

Marseille, France, 13354