Status:

COMPLETED

Hydroxyurea Therapy for Neurological and Cognitive Protection in Pediatric Sickle Cell Anemia in Uganda ( BRAINSAFE-II )

Lead Sponsor:

Global Health Uganda LTD

Collaborating Sponsors:

Columbia University

University of Pittsburgh

Conditions:

Sickle Cell Anemia in Children

Eligibility:

All Genders

3-9 years

Phase:

PHASE3

Brief Summary

Worldwide, an estimated 200,000 babies are born with Sickle Cell Anemia (SCA) annually. Affected children suffer chronic ill health with some having frequent hospitalization. The patients are also at ...

Detailed Description

Annually, an estimated 200,000 babies are born with Sickle Cell Anemia (SCA) worldwide. Affected children often suffer repeated acute illnesses and chronic ill health from vascular occlusive phenomeno...

Eligibility Criteria

Inclusion

  • Documented laboratory diagnosis of HbSS or HbS-B 0 thalassemia (both types are treated equally in SCA studies)
  • Ages 3 through 9 years (inclusive) at enrolment
  • To ensure clinic follow-up, child has attended Mulago Hospital Sickle Cell Anaemia (SCA)clinic 2 times in the prior 4 years, or at least once in the past 2 years if younger than \< 4 years
  • No history of hydroxyurea use for longer than 6 months
  • Parent/legal guardian has provided a written consent (and if child is ≥8 years of age, has provided assent)

Exclusion

  • History of neurological abnormality known before age 4 months (to avoid those with non SCA brain injury)
  • Child is currently enrolled in another clinical intervention trial
  • Prior stroke as detected by standard Pediatric NIH Stroke Scale (PedNIHSS) examination
  • Temporary exclusion criteria
  • Pre-existing hematological toxicity
  • Hemoglobin \<4.0 gm/dL
  • Hemoglobin \<6.0 gm/dL with Absolute Reticulocyte Count \<100 x 10 9/L
  • Absolute Reticulocyte Count \<80 x 109/L with Hemoglobin \<7.0 gm/dL
  • Platelets \<80 x 109/L
  • Absolute Neutrophil Count \<1.0 x 109/L
  • Found to be with acute illness at enrolment with fever in last 1 week, respiratory infection, etc.
  • History of a sickle crisis within the prior 2 weeks, or blood transfusion within the past 90 days Participants with temporary exclusion can be enrolled later when stable or the excluding criteria has resolved

Key Trial Info

Start Date :

March 9 2021

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

March 10 2025

Estimated Enrollment :

270 Patients enrolled

Trial Details

Trial ID

NCT04750707

Start Date

March 9 2021

End Date

March 10 2025

Last Update

April 17 2025

Active Locations (1)

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Global Health Uganda

Kampala, Uganda, +256