Status:
RECRUITING
A Natural History Study of Children and Adults With Olfactory Neuroblastoma
Lead Sponsor:
National Cancer Institute (NCI)
Conditions:
Olfactory Neuroblastoma
Esthesioneuroblastoma
Eligibility:
All Genders
3-120 years
Brief Summary
Background: Olfactory neuroblastoma (ONB) is a rare cancer. It grows from tissue in the upper part of the nose cavity, related to the sense of smell and can affect a person s sense of smell. Research...
Detailed Description
Background: Olfactory neuroblastoma (ONB), also known as esthesioneuroblastoma, is a malignant tumor of the nasal cavity believed to arise from the olfactory epithelium. ONB is rare, with a reported ...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Subjects must also enroll on NCI Protocol 18-DC-0051: "Biospecimen Procurement for NIDCD Clinical Protocols".
- Subjects with histologically documented olfactory neuroblastoma.
- Age \>= 3 years old.
- Ability of subject to understand and the willingness to sign a written consent document
- EXCLUSION CRITERIA:
- Pregnant women are excluded from this study because of more than minimal risk activities (imaging studies with contrast, biopsies) pertaining to enrollment.
Exclusion
Key Trial Info
Start Date :
June 2 2022
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 31 2029
Estimated Enrollment :
525 Patients enrolled
Trial Details
Trial ID
NCT04755205
Start Date
June 2 2022
End Date
December 31 2029
Last Update
January 8 2026
Active Locations (1)
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1
National Institutes of Health Clinical Center
Bethesda, Maryland, United States, 20892