Status:

ACTIVE_NOT_RECRUITING

Improving Care After Inherited Cancer Testing

Lead Sponsor:

Vanderbilt-Ingram Cancer Center

Collaborating Sponsors:

National Cancer Institute (NCI)

University of South Florida

Conditions:

Inherited Cancer Syndrome

Prostate Cancer

Eligibility:

All Genders

18+ years

Phase:

NA

Brief Summary

The IMPACT Study seeks to refine and evaluate the effectiveness of interventions on improving guideline-adherent cancer risk management (CRM) and family communication (FC) of genetic test results for ...

Detailed Description

Through recruitment of a racially, geographically, and socioeconomically diverse sample of patients, we will achieve the following aims: 1. Evaluate factors associated with access to genetic risk ass...

Eligibility Criteria

Inclusion

  • Randomized Controlled Trial Eligibility: All trial participants will be autonomous adults who are capable of participating in the study
  • Inclusion Criteria:
  • English-speaking men and women aged 18 years or older
  • Not adopted (i.e., have information about their biological relatives)
  • Have access to internet and a computer, tablet, or smartphone
  • Documented pathogenic/likely pathogenic variant in an inherited cancer gene that has CRM guidelines listed in the National Comprehensive Cancer Network (NCCN) Genetic/Familial Panel focused on Breast, Ovarian, and Pancreatic or Colorectal cancers
  • Must meet at least one of the following criteria:
  • Intervention A (GeneSHARE) criteria: Have at least one at-risk adult, living relative who either:
  • has not been told about the genetic test result by the participant
  • has not had their own genetic testing
  • Intervention B (LivingLabReport) criteria: Are non-adherent (i.e., either undertreatment or overtreatment) to at least one of the current NCCN CRM guidelines or if currently adherent, require ongoing cancer screening
  • VUS Pilot Study Eligibility: All VUS pilot study participants will be autonomous adults who are capable of participating in the study. Eligibility criteria include:
  • English-speaking men and women aged 18 years or older
  • Not adopted (i.e., have information about their biological relatives)
  • Have access to internet and a computer, tablet, or smartphone
  • Documented VUS in an inherited cancer gene

Exclusion

    Key Trial Info

    Start Date :

    August 5 2022

    Trial Type :

    INTERVENTIONAL

    Allocation :

    ESTIMATED

    End Date :

    December 1 2028

    Estimated Enrollment :

    720 Patients enrolled

    Trial Details

    Trial ID

    NCT04763915

    Start Date

    August 5 2022

    End Date

    December 1 2028

    Last Update

    September 19 2025

    Active Locations (1)

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    Vanderbilt-Ingram Cancer Center

    Nashville, Tennessee, United States, 37212

    Improving Care After Inherited Cancer Testing | DecenTrialz