Status:
COMPLETED
Mortality and Morbidity Outcomes in Marfans
Lead Sponsor:
Barts & The London NHS Trust
Collaborating Sponsors:
Liverpool Heart and Chest Hospital NHS Foundation Trust
Aortic Dissection Awareness UK & Ireland.
Conditions:
Marfan Syndrome
Marfan Syndrome Cardiovascular Manifestations
Eligibility:
All Genders
18-120 years
Brief Summary
Marfan Syndrome (MFS) is a genetic disease affecting the eyes, skeleton, heart and arteries. Despite MFS affecting multiple organ systems, cardiovascular manifestations are the most serious and life t...
Detailed Description
Marfan Syndrome (MFS) is a genetic disease affecting the eyes, skeleton, heart and arteries. Despite MFS affecting multiple organ systems, cardiovascular manifestations are the most serious and life t...
Eligibility Criteria
Inclusion
- \>/= 18 years old at the time of surgery
- Identified MFS in the HES database using the ICD diagnosis code Q874 between January 2010- December 2019
- Had an aorto-vascular surgery in England and Wales, as identified in the NICOR Adult Cardiac Surgery database
Exclusion
- \< 18 years old at the time of surgery
Key Trial Info
Start Date :
December 1 2023
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
June 30 2024
Estimated Enrollment :
6700 Patients enrolled
Trial Details
Trial ID
NCT04774172
Start Date
December 1 2023
End Date
June 30 2024
Last Update
August 23 2024
Active Locations (1)
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1
St Bartholomews Hospital
London, United Kingdom, EC1A 7BE