Status:
UNKNOWN
Accessibility of Prophylaxis and On-demand Treatment for Persons With Haemophilia and Other Coagulation Deficiencies
Lead Sponsor:
RESCUe - RESeau Cardiologie Urgence / RESUVal - RESeau des Urgences de la vallée du Rhône
Collaborating Sponsors:
Hospices Civils de Lyon
Conditions:
Health Services Accessibility
Blood Coagulation Factor Deficiencies
Eligibility:
All Genders
Brief Summary
The current treatment of people with haemophilia and other bleeding deficiencies is largely based on clotting factor replacement therapy. The injections can be repeated several times a week according ...
Detailed Description
Haemophilia is a rare constitutional hemorrhagic disease whose drug management is based on the use of chronic lifelong replacement therapy. For many years, the reference treatment, particularly in chi...
Eligibility Criteria
Inclusion
- Included:
- Living person on the study start date and presenting with haemophilia or other coagulation deficiencies;
- Treated with prophylaxis or on-demand anti-haemorrhagic treatments;
- Location of medication dispensing within the hospital pharmacies of the HEsora network (Hémophilie Soins Rhône Alpes): 27 eligible hospital pharmacies in Rhône Alpes + \<10 eligible hospital pharmacies in Auvergne
- Excluded:
- \- Home delivery (not included in the study via hospital pharmacy)
Exclusion
Key Trial Info
Start Date :
September 21 2020
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
May 21 2021
Estimated Enrollment :
500 Patients enrolled
Trial Details
Trial ID
NCT04775888
Start Date
September 21 2020
End Date
May 21 2021
Last Update
May 14 2021
Active Locations (34)
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1
Centre Hospitalier Albertville-Moûtiers
Albertville, France, 73200
2
Centre Hospitalier Annecy Genevois
Annecy, France, 74370
3
Centre Hospitalier d'Ardèche Nord
Annonay, France, 07103
4
Centre Hospitalier d'Ardèche Méridionale
Aubenas, France, 07200