Status:
UNKNOWN
Survey on the Expectations of Adolescents With Juvenile Idiopathic Arthritis (JIA) Regarding Knowledge and Communication With Health Care Professionals in the Field of Sexual Health, and Their Parents' Views on the Subject. (SNAPS-JIA)
Lead Sponsor:
University Hospital, Clermont-Ferrand
Collaborating Sponsors:
Societe Francaise de Rhumatologie
Conditions:
Juvenile Idiopathic Arthritis
Eligibility:
All Genders
18-45 years
Brief Summary
Sexual health is a legitimate area to explore in the care of these patients, as it has such an impact on quality of life. However, addressing sexual health in a situation of chronic disease confronts ...
Detailed Description
This study is non-interventional, multi-centre and does not change current practice. It will begin with the construction in a multidisciplinary team of two "needs assessment" questionnaires, the firs...
Eligibility Criteria
Inclusion
- Patients :
- Patients with juvenile rheumatoid arthritis aged from 18 to 45 years
- \- Major male or female patient \[18 to 45 years of age\] with juvenile idiopathic arthritis reported before the age of 16.
- \- Able to understand and complete the questionnaire online (speaking and reading French, with an internet connection for completion via RedCap°). ¬
- \- Able to give informed consent to participate
- \- Involving one's parents in the survey is not a prerequisite for inclusion.
- Parents :
- Parents of patients with juvenile rheumatoid arthritis aged from 18 to 45 years
- \- Parents of adult patients with JIA
- \- Parents able to understand and complete the questionnaire online (speaking and reading French, having an internet connection for completion via Red Cap°).
- \- Able to give informed consent to participate
- \- The parents must have been in charge of the patient as a teenager.
Exclusion
- Persons opposing participation in the study. The study information letters will specify that participation is consent to participate in the study.
- Protected persons
Key Trial Info
Start Date :
May 1 2021
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
June 1 2022
Estimated Enrollment :
300 Patients enrolled
Trial Details
Trial ID
NCT04791189
Start Date
May 1 2021
End Date
June 1 2022
Last Update
March 10 2021
Active Locations (15)
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1
CHU Bordeaux Pellegrin
Bordeau, France, 33000
2
AP-HP
Boulogne-Billancourt, France, 92104
3
Hôpital de La Cavale Blanche
Brest, France, 29200
4
CHU de Clermont-Ferrand
Clermont-Ferrand, France, 63000