Status:
UNKNOWN
Turner And Klinefelter Treatment Target Study
Lead Sponsor:
dr. Laura C. G. de Graaff-Herder
Conditions:
Klinefelter Syndrome
Turner Syndrome
Eligibility:
All Genders
18+ years
Brief Summary
Rationale: Health related Quality of life (HRQoL) is impaired in patients with Turner and Klinefelter syndrome (TS and KS). It is unknown what the optimal endocrine treatment target values are that ma...
Detailed Description
Rationale: Health related Quality of life (HRQoL) is impaired in patients with Turner and Klinefelter syndrome (TS and KS). It is unknown what the optimal endocrine treatment target values are that ma...
Eligibility Criteria
Inclusion
- Klinefelter or Turner syndrome as confirmed by genetic testing
- Sufficient knowledge of the Dutch language to complete the questionnaires
- At least 18 years old
Exclusion
- KS: Patients not under treatment in the EMC, AMC or VUmc or no planned visits during the study period
- TS: No laboratory values or no questionnaires available in patient records
- Severe psychiatric or neurologic disorders or other reasons for inability to complete the questionnaires as assessed by the treating physician.
- Failure to obtain informed consent
Key Trial Info
Start Date :
July 1 2018
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2024
Estimated Enrollment :
370 Patients enrolled
Trial Details
Trial ID
NCT04803474
Start Date
July 1 2018
End Date
December 1 2024
Last Update
September 6 2023
Active Locations (1)
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1
Erasmus Medical Center
Rotterdam, South Holland, Netherlands, 3015 GD