Status:
UNKNOWN
The Evaluating Multidisciplinary Bone Marrow Failure Care in Bone Marrow Failure and Related Disorders.
Lead Sponsor:
Peter MacCallum Cancer Centre, Australia
Conditions:
Bone Marrow Failure Syndrome
Aplastic Anemia
Eligibility:
All Genders
18+ years
Brief Summary
This is a prospective hybrid implementation-effectiveness study of a model of care for patients with bone marrow failure syndromes and inherited predisposition to haematological malignancy that includ...
Detailed Description
The inherited bone marrow disorders (IBMD) comprise both the traditional inherited bone marrow failure syndromes (BMFS) and the more recently described entity of germline predisposition to haematologi...
Eligibility Criteria
Inclusion
- Patients must meet all the following criteria for study entry:
- Age \> or = 18 years at enrolment
- Able to give informed consent (or responsible family member able to give informed consent)
- Patient is receiving care under the institutional guidelines/stream model of care
Exclusion
- 1\. Patient not eligible for management under the model of care
Key Trial Info
Start Date :
June 9 2021
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
April 1 2024
Estimated Enrollment :
100 Patients enrolled
Trial Details
Trial ID
NCT04819607
Start Date
June 9 2021
End Date
April 1 2024
Last Update
August 23 2021
Active Locations (1)
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1
Peter MacCallum Cancer Centre
Melbourne, Victoria, Australia, 3000