Status:

RECRUITING

Persons With Dementia and Their Extended Family Caregivers

Lead Sponsor:

Karen Roberto

Collaborating Sponsors:

National Institute on Aging (NIA)

Conditions:

Dementia

Dementia Alzheimers

Eligibility:

All Genders

18+ years

Brief Summary

Immediate family members shoulder the majority of care responsibilities for persons living with dementia. However, due to various societal changes, elder care responsibilities have expanded to extende...

Eligibility Criteria

Inclusion

  • Speaks/reads English
  • Resident of Virginia, North Carolina, Maryland, West Virginia, Tennessee, Kentucky or Washington, D.C.
  • Age 18+
  • Is either the grandchild, sibling, niece/nephew, step-kin, adult child or spouse of the person living with dementia
  • Is providing hands-on care and/or overall management of care for a person living with dementia in the community
  • Caregiver co-resides with the person with dementia or has face-to-face contact with the person with dementia at least 3 days/week
  • Has no difficulty talking/hearing on the telephone

Exclusion

  • Caregiver of persons with mild cognitive impairment
  • Person with dementia lives in service-enriched housing such as a continuing care community, or residential facilities, such as assisted living facilities or nursing homes

Key Trial Info

Start Date :

September 11 2021

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

December 1 2026

Estimated Enrollment :

360 Patients enrolled

Trial Details

Trial ID

NCT04863859

Start Date

September 11 2021

End Date

December 1 2026

Last Update

September 22 2025

Active Locations (1)

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Virginia Polytechnic Institute and State University

Blacksburg, Virginia, United States, 24061