Status:

NOT_YET_RECRUITING

The World Federation of Hemophilia Gene Therapy Registry

Lead Sponsor:

World Federation of Hemophilia

Conditions:

Hemophilia

Eligibility:

All Genders

Up to 100 years

Brief Summary

The aim of the WFH GTR is to provide a database in which long-term data on PWH who receive gene therapy from around the world, will be collected and housed.

Detailed Description

The first gene therapy product for hemophilia is expected to receive marketing authorization in 2020, with several others following closely behind. With these new therapies hitting the market in the n...

Eligibility Criteria

Inclusion

  • People with hemophilia who have received a gene therapy product

Exclusion

  • None

Key Trial Info

Start Date :

January 1 2022

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

January 1 2050

Estimated Enrollment :

5000 Patients enrolled

Trial Details

Trial ID

NCT04883710

Start Date

January 1 2022

End Date

January 1 2050

Last Update

May 12 2021

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