Status:
COMPLETED
Assessment of the State of Health, Quality of Life and Expectations of Patients With Hereditary Angioedema
Lead Sponsor:
University Hospital, Grenoble
Conditions:
Hereditary Angioedema
Eligibility:
All Genders
Brief Summary
8 years after the establishment of the therapeutic education program and 14 years after the creation of the National Reference Center for Angioedemas (CREAK), it is necessary to make an inventory in 2...
Eligibility Criteria
Inclusion
- Patient with HAE with or without C1 inhibitor deficiency
- Patient over 15 or parents of a child under 15 with HAE
Exclusion
- Patient opposed to the use of their data or refusing to answer the questionnaire
- Adult patients protected by law
Key Trial Info
Start Date :
May 3 2021
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
January 2 2022
Estimated Enrollment :
314 Patients enrolled
Trial Details
Trial ID
NCT04888650
Start Date
May 3 2021
End Date
January 2 2022
Last Update
May 10 2023
Active Locations (1)
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1
CHUGA
Grenoble, France