Status:
UNKNOWN
South Asian Arrhythmogenic Cardiomyopathy Registry
Lead Sponsor:
Sheri Kashmir Institute of Medical Sciences
Collaborating Sponsors:
Indian Heart Rhythm Society
Sri Jayadeva Institute of Cardiovascular Sciences and Research
Conditions:
Arrhythmogenic Right Ventricular Cardiomyopathy
Arrhythmogenic Right Ventricular Dysplasia
Eligibility:
All Genders
Brief Summary
Arrhythmogenic Cardiomyopathy (ACM) is increasingly identified as an important cause of cardiac morbidity and mortality, especially of SCD, in a younger population. Although there are no epidemiologi...
Detailed Description
Arrhythmogenic Cardiomyopathy (ACM) is an inherited cardiomyopathy characterized by structural and functional abnormalities in the right ventricle (and left ventricle, in 50%) resulting in ventricular...
Eligibility Criteria
Inclusion
- Patients diagnosed with ACM according to 2010 Task Force CriteriaParents of ACM patients
- Siblings of ACM patients
- Relatives of ACM patients who have suffered an SCD
Exclusion
- ACM patients or their relatives who refuse to give consent for participation in the study.
- Study subjects who refuse to provide consent for a specific test or investigation will not be excluded.
Key Trial Info
Start Date :
April 10 2021
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
May 1 2022
Estimated Enrollment :
100 Patients enrolled
Trial Details
Trial ID
NCT04895540
Start Date
April 10 2021
End Date
May 1 2022
Last Update
June 2 2021
Active Locations (3)
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1
University of Pennsylvania
Philadelphia, Pennsylvania, United States, 19104
2
Sher-i-Kashmir Institute of Medical Sciences
Srinagar, Jammu and Kashmir, India, 190011
3
Sri Jayadeva Institute of Cardiovascular Sciences and Research
Bangalore, Karnataka, India, 560029