Status:
RECRUITING
SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours
Lead Sponsor:
Institut Curie
Conditions:
Neuroblastoma
Ganglioneuroblastoma
Eligibility:
All Genders
Phase:
NA
Brief Summary
The SIOPEN BIOPORTAL is a prospective non-therapeutic multi-centre international study aimed at developing an international Registry linked to a Virtual Biobank for all the patients with peripheral ne...
Eligibility Criteria
Inclusion
- Inclusion Criteria:
- I-1. Patients with PNT: ganglioneuroma or ganglioneuroblastoma or neuroblastoma, I-2. At the time of initial diagnosis of neuroblastic tumour, or at relapse/progression if not yet registered I-3. Written patient informed consent, or parents or legal representative written informed consent and assent of the child, adolescent or young adult
- Non-Inclusion Criteria:
- R-1. (Adult) Patients with olfactory neuroblastoma R-2. Central nervous system (CNS) neuroblastoma (as per the WHO classification)
Exclusion
Key Trial Info
Start Date :
November 2 2023
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
November 2 2038
Estimated Enrollment :
600 Patients enrolled
Trial Details
Trial ID
NCT05192980
Start Date
November 2 2023
End Date
November 2 2038
Last Update
July 22 2025
Active Locations (38)
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1
Fakultni nemocnice v Motole
Prague, Czechia, 150 06
2
CHU Amiens
Amiens, France, 80054
3
Chu Angers
Angers, France, 49033
4
Hôpital Jean Minjoz
Besançon, France, 25030