Status:

ACTIVE_NOT_RECRUITING

A Study to Evaluate the Effect of Venglustat Tablets on Neuropathic and Abdominal Pain in Male and Female Participants ≥16 Years of Age With Fabry Disease

Lead Sponsor:

Sanofi

Conditions:

Fabry Disease

Eligibility:

All Genders

16+ years

Phase:

PHASE3

Brief Summary

This is a 12-month, parallel treatment, Phase 3, double-blind, randomized, placebo-controlled study to evaluate the effect of venglustat on neuropathic and abdominal pain symptoms of Fabry disease in ...

Detailed Description

Double blind period: the total duration will be up to approximately of 14 months (1 month of screening 12 month of treatment period, and a possible follow-up period of 1 month if no participation in t...

Eligibility Criteria

Inclusion

  • Male and female adult patients 16 year of age or older, who have had a previously confirmed diagnosis of Fabry disease and a history of clinical symptoms of Fabry disease
  • Patients who are treatment-naïve or without prior treatment with an approved or experimental therapy for Fabry disease within at least 6 months prior to screening.
  • Average score of ≥3 (0=no symptom, 10=symptom as bad as you can imagine) on the participant-defined most-bothersome symptom (among neuropathic pain in upper extremities, neuropathic pain in lower extremities, or abdominal pain), as measured by the Fabry Disease Patient-Reported Outcome (FD-PRO) at screening.
  • Contraception (with double contraception methods) for male and female participants; not pregnant or breastfeeding for female participants; no sperm donation for male participants.
  • Weight ≥30 Kg
  • A signed informed consent must be provided prior to any study-related procedures.

Exclusion

  • Any manifestations of Fabry disease that preclude placebo administration.
  • History of transient ischemic attack, stroke, myocardial infarction, heart failure, evidence of left ventricular hypertrophy and/or cardiac fibrosis, major cardiovascular surgery, or kidney transplantation.
  • History of clinically significant cardiac arrhythmia. Atrial fibrillation that is well controlled on a stable medical regimen for at least 12 months is not an exclusion if the CHA2DS2-VASc score is 0 for males or 1 for females.
  • Patients with hepatitis C, HIV, or hepatitis B infection.
  • Neuropathic pain in upper or lower extremities, or abdominal pain not related to Fabry disease.
  • History of seizures currently requiring treatment.
  • Uncontrolled hypertension over the past 12 months prior to screening, or systolic BP \>=150 or diastolic BP \>=100 at screening.
  • Estimated glomerular filtration rate \<60 mL/min/1.73m².
  • Urine protein to creatinine ratio \>= 1 g/g at screening.
  • Presence of severe depression as measured by Beck's Depression Inventory (BDI)-II \>28 and/or a history of an untreated, unstable major affective disorder within 1 year of the screening visit.
  • Positive SARS-CoV-2 virus test within 2 weeks of enrollment, or COVID 19 requiring hospitalization within 6 months of enrollment.
  • Moderate to severe hepatic impairment.
  • History of drug and/or alcohol abuse.
  • History of or active hepatobiliary disease.
  • Liver enzymes (alanine aminotransferase (ALT)/aspartate aminotransferase (AST)) or total bilirubin \>2 times the upper limit of normal (ULN).
  • Initiation of chronic treatment for pain, or change in pain medication regimen, within 3 months prior to randomization.
  • Strong or moderate inducers or inhibitors of cytochrome P450 3A within 14 days or 5 half-lives, whichever is longer, prior to randomization.
  • The above information is not intended to contain all considerations relevant to a potential participation in a clinical trial.

Key Trial Info

Start Date :

March 11 2022

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

January 4 2027

Estimated Enrollment :

122 Patients enrolled

Trial Details

Trial ID

NCT05206773

Start Date

March 11 2022

End Date

January 4 2027

Last Update

July 20 2025

Active Locations (58)

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Page 1 of 15 (58 locations)

1

Nephrology Clinic at Kirklin Clinic of UAB Hospital_Investigational Site Number: 8400011

Birmingham, Alabama, United States, 35233

2

UCLA Medical Center_Investigational Site Number: 8400006

Los Angeles, California, United States, 90095

3

University of California Irvine Medical Center- Site Number : 8400019

Orange, California, United States, 92868

4

Advent Health Orlando_Investigational Site Number: 8400008

Orlando, Florida, United States, 32804