Status:
UNKNOWN
Questionnaire Study to Assess the Outcomes of the Management of Congenital Adrenal Hyperplasia Individuals
Lead Sponsor:
Manchester University NHS Foundation Trust
Conditions:
Adrenal Hyperplasia, Congenital
Eligibility:
All Genders
16-100 years
Brief Summary
This is a questionnaire study involving women and young girls affected by Congenital Adrenal Hyperplasia (CAH) and their parents. The aim is to obtain information regarding the outcomes of conservativ...
Detailed Description
Congenital adrenal hyperplasia (CAH) is a heterogeneous group of autosomal-recessive disorders that results in virilisation of the female child due to intrauterine exposure to androgens at a critical ...
Eligibility Criteria
Inclusion
- Parents of CAH affected 46XX individuals aged 2 years and over who were born with virilised genitalia
- CAH affected 46XX individuals who were born with virilised genitalia, 16 years of age and over.
Exclusion
- Female DSD children with virilisation which is not due to CAH
- Non-virilised CAH patients
- CAH patients raised as male
- Parents of individuals excluded as above
- Participants who cannot understand questionnaires in English
Key Trial Info
Start Date :
February 28 2022
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
February 1 2024
Estimated Enrollment :
61 Patients enrolled
Trial Details
Trial ID
NCT05228652
Start Date
February 28 2022
End Date
February 1 2024
Last Update
March 13 2023
Active Locations (1)
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1
Manchester University NHS Foundation trust
Manchester, United Kingdom, M13 OHY