Status:

RECRUITING

A Study to Evaluate the Safety of AB-1003 (Previously LION-101) in Subjects With Genetic Confirmation of LGMD2I/R9 (Part1)

Lead Sponsor:

AskBio Inc

Conditions:

Limb Girdle Muscular Dystrophy

Limb-Girdle Muscular Dystrophy Type 2

Eligibility:

All Genders

18-65 years

Phase:

PHASE1

PHASE2

Brief Summary

The purpose of this study is to evaluate the safety and tolerability of a single intravenous infusion of AB-1003 in adults diagnosed with limb girdle muscular dystrophy type 2I/R9 (LGMD2I/R9). Partici...

Eligibility Criteria

Inclusion

  • Male and female subjects aged 18 and 65 years with clinical diagnosis of LGMD2I/R9 and confirmation of FKRP gene mutation.
  • Ability to ascend 4 stairs between 2.5 and 10 seconds.
  • Ability to walk/run 10 meters in \<30 seconds.
  • Able to understand and comply with all study procedures.
  • Sexually active females of childbearing potential and female and male partners of male subjects receiving study intervention must use a barrier method of contraception for the first 6 months after dosing.

Exclusion

  • Significant cardiomyopathy as defined by echocardiogram (left ventricular ejection fraction \<40%), evidence of conduction defect (increased PR and RR intervals, left bundle branch block and QTcF \>480m/sec), NYHA Class 3 or 4 heart failure, or MRI gadolinium enhancement evidence of clinically important myocardial fibrosis.
  • Contraindication to MRI or hypersensitivity to contrast dyes, shellfish or iodine.
  • Implanted spinal rods, cardiac pacemaker or other implantation that would distort cardiac MRI images.
  • History of active, ongoing chronic liver disease (e.g. hepatitis, HIV-related liver disease, hemochromatosis, steatosis, etc.) or abnormal liver function tests (abnormal GGT and/or abnormal total/direct bilirubin \>upper limit of normal \[ULN\] and/or elevated AST and ALT \>2 ULN).
  • Abnormal renal function (GFR \<60 ml/min, using the Modification of Diet in Renal Disease equation).
  • Any life-threatening disease, including malignant neoplasms and medical history or malignant neoplasms within the past 5 years prior to screening (except basal and squamous cell skin cancer).
  • In the opinion of the investigator, a pre-existing medical condition that predisposes the subject to risks that outweighs the potential benefits.
  • Requirement for daytime ventilatory support.
  • Change in glucocorticosteroid treatment within 3 months prior to screening visit.
  • Exposure to another investigational drug within 3 months prior to study treatment or any previous treatment with gene therapy.
  • Ongoing participation in any other therapeutic clinical trial.
  • Neutralizing antibody titer to AAV9 \>1:5.
  • Female subjects who are pregnant, plan to become pregnant in the next 12 months, or breastfeeding.

Key Trial Info

Start Date :

May 15 2023

Trial Type :

INTERVENTIONAL

Allocation :

ESTIMATED

End Date :

December 1 2032

Estimated Enrollment :

10 Patients enrolled

Trial Details

Trial ID

NCT05230459

Start Date

May 15 2023

End Date

December 1 2032

Last Update

December 18 2025

Active Locations (6)

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Page 1 of 2 (6 locations)

1

University of California - Irvine

Irvine, California, United States, 92697

2

University of Iowa

Iowa City, Iowa, United States, 52242

3

University of Kansas Medical Center

Kansas City, Kansas, United States, 66160

4

Kennedy Krieger Institute

Baltimore, Maryland, United States, 21205