Status:
COMPLETED
Making HD Voices Heard
Lead Sponsor:
Huntington Study Group
Conditions:
Huntington Disease
Eligibility:
All Genders
18+ years
Brief Summary
The Pilot Study, Making HD Voices Heard, will ask people living with HD to report what they experience and how they function.
Detailed Description
The Huntington Study Group (HSG) myHDstory™ Platform is an online, observational research platform that will host the Pilot Study, Making HD Voices Heard. The Pilot Study will ask people living with H...
Eligibility Criteria
Inclusion
- Adults age 18 years and older
- Willing and able to provide informed consent electronically.
- Individuals answering as a participant must self-report they have been diagnosed with HD by a doctor.
- Ability to answer online questions or direct someone else to enter answers for them.
- Ability to ambulate independently and take care of some of his or her personal needs.
- Ability to read and understand English.
- Willing to create a unique identifier based on personal demographic information.
- Residing in the United States or its territories
- Owning or having access to an electronic device and secure internet connectivity
Exclusion
- An individual who does not meet all the inclusion criteria will be excluded from participation in this study.
Key Trial Info
Start Date :
March 23 2022
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
October 11 2023
Estimated Enrollment :
698 Patients enrolled
Trial Details
Trial ID
NCT05268029
Start Date
March 23 2022
End Date
October 11 2023
Last Update
October 12 2023
Active Locations (1)
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1
Huntington Study Group
Rochester, New York, United States, 14618