Status:
COMPLETED
Palliative Care for Persons With ADRD and CI in SNF
Lead Sponsor:
University of Maryland, Baltimore
Collaborating Sponsors:
National Institute on Aging (NIA)
National Institute of Nursing Research (NINR)
Conditions:
Advance Care Planning
Palliative Care
Eligibility:
All Genders
60+ years
Phase:
NA
Brief Summary
Alzheimer's disease and related dementias (ADRD) are serious, life limiting illnesses with no known cure. Dementia is the fifth-leading cause of death in older adults and the majority of people with a...
Detailed Description
In this pragmatic clinical trial, broadcast notification will be utilized to inform all newly admitted patients at each study site of their participation in this trial. During the admission process, p...
Eligibility Criteria
Inclusion
- KEY INCLUSION CRITERIA
- Patients:
- Admitted for SNF post-acute care at a participating NHs following a recent hospitalization
- Age ≥ 60 years old
- Speaks English (if verbal)
- If non-verbal/unable to participate in a conversation and/or unable to make decisions, a legally authorized representative (LAR)/surrogate decision maker who can make decisions for the patient as determined by ACTs staff
- Documented ADRD diagnosis in the medical record or history of cognitive impairment (defined as BIMS score ≤ 12)
- At least one global indicator for PC at SNF admission (provider would not be surprised if patient died within 1 year, believes the patient would benefit from advance care planning or symptom management; frequent hospital or NH SNF admissions; complex care requirements; decline in function; feeding intolerance; unintended decline in weight; or previous hospice assessment or enrollment and subsequent discharge)
- Surrogate/LAR:
- ≥18 years old
- Family member or friend of an eligible patient as determined by ACTs staff
- Speaks English
- KEY EXCLUSION CRITERIA
- Patients:
- Who have previously received or are referred for PC by their primary care team
- With a discharge plan within 48 hours of screening
- Currently receiving hospice care
- Who do not have one global indicator of need
- No documented ADRD diagnosis or history of cognitive impairment in the medical record
- That are non-English speaking, (if verbal)
- If unable to make decisions, do not have an LAR/surrogate decision maker.
- Surrogate/LAR:
- \< 18 years of age
- Not a family Member or friend of an eligible patient
- Non-English speaking
Exclusion
Key Trial Info
Start Date :
June 15 2022
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
December 14 2023
Estimated Enrollment :
7 Patients enrolled
Trial Details
Trial ID
NCT05308004
Start Date
June 15 2022
End Date
December 14 2023
Last Update
December 27 2024
Active Locations (1)
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1
Acts Continuing Care Retirement Communities
Philadelphia, Pennsylvania, United States, 19014