Status:

COMPLETED

The Experiences of People Who Live With Glanzmanns Thrombasthenia.

Lead Sponsor:

Haemnet

Collaborating Sponsors:

Hemab ApS

Conditions:

Glanzmann Thrombasthenia

Eligibility:

All Genders

Up to 100 years

Brief Summary

To understand the lived experiences of people with Glanzmanns Thrombasthenia

Detailed Description

A qualitative study of people with Glanzmanns Thrombasthenia including an on-line survey, qualitative in-depth interviews and bleed diary completion.

Eligibility Criteria

Inclusion

  • Clinical diagnosis of congenital (inherited) Glanzmanns Thrombasthenia

Exclusion

  • Acquired Glanzmanns Thrombasthenia

Key Trial Info

Start Date :

April 27 2022

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

April 27 2023

Estimated Enrollment :

122 Patients enrolled

Trial Details

Trial ID

NCT05315232

Start Date

April 27 2022

End Date

April 27 2023

Last Update

March 13 2024

Active Locations (1)

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Page 1 of 1 (1 locations)

1

Oxford University Hospitals NHS Foundation Trust

Oxford, Oxfordshire, United Kingdom, OX3 7LE

The Experiences of People Who Live With Glanzmanns Thrombasthenia. | DecenTrialz