Status:
RECRUITING
Congenital Aniridia Patient Questionnaire
Lead Sponsor:
Assistance Publique - Hôpitaux de Paris
Collaborating Sponsors:
URC-CIC Paris Descartes Necker Cochin
Conditions:
Congenital Aniridia
Eligibility:
All Genders
Brief Summary
Congenital aniridia is a pan-ocular genetic disease characterized by a partial or complete absence of the iris, hence its name. The prevalence ranges from 1 / 40,000 to 1 / 96,000 births, but it may b...
Detailed Description
Congenital aniridia is a pan-ocular genetic characterized by partial or complete absence of the iris, hence its name. The prevalence ranges from 1 / 40,000 to 1 / 96,000 births, but it may be underest...
Eligibility Criteria
Inclusion
- Any patient ≥ 18 years old with congenital aniridia and able to respond independently to the study survey,
- or patients under 18 years old with congenital aniridia, whose parents can answer the study survey,
- adult patients or holders of parental authority and minor patients informed and not opposed to participation in the study.
Exclusion
- \- Patients with neurological disorders preventing them from answering the survey, except in the case of minor patients, if the parents can answer for the patient.
Key Trial Info
Start Date :
June 8 2023
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
June 8 2026
Estimated Enrollment :
100 Patients enrolled
Trial Details
Trial ID
NCT05390801
Start Date
June 8 2023
End Date
June 8 2026
Last Update
September 15 2025
Active Locations (1)
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1
Hôpital Necker-Enfants Malades
Paris, France, 75015