Status:
COMPLETED
Df-Life : Quality of Life in Patients With Fibrous Dysplasia
Lead Sponsor:
Hospices Civils de Lyon
Conditions:
Fibrous Dysplasia
Eligibility:
All Genders
18+ years
Brief Summary
Fibrous dysplasia (FD) is a congenital skeletal disorder with multiple complications such as bone pain, fractures, deformities and nerve compression. Few quantitative studies have demonstrated its phy...
Eligibility Criteria
Inclusion
- Men and women
- 18 years and more
- with Fibrous dysplasia
- Being followed in the rheumatology Department of the E. Herriot Hospital in Lyon.
- Non-opposition to take part in the study
- written consent to the audio recording of the discussions.
Exclusion
- Legal incapacity or limited legal capacity
- Psychiatric or neurological condition that severely impairs comprehension
- Difficulty understanding spoken French
- Patients with another pathology with a major impact on quality of life
Key Trial Info
Start Date :
November 28 2022
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
May 2 2023
Estimated Enrollment :
149 Patients enrolled
Trial Details
Trial ID
NCT05406544
Start Date
November 28 2022
End Date
May 2 2023
Last Update
March 22 2024
Active Locations (1)
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1
Edouard Herriot Hospital - rheumatology
Lyon, France, 69003