Status:
RECRUITING
Targeted Interventions for Successful Transition and Transfer of Adolescents With Inborn Errors of Metabolism to Adult Services
Lead Sponsor:
University Children's Hospital, Zurich
Conditions:
Transition
Inborn Errors of Metabolism
Eligibility:
All Genders
14-25 years
Phase:
NA
Brief Summary
Main aims of this project are * To assess the baseline status-quo of transition and "fitness for transfer" in terms of information about the adult centre and team, organisational and practical skills...
Eligibility Criteria
Inclusion
- Patients
- with an inborn error of metabolism in the care of a specialized metabolic care unit
- requiring specialized adult metabolic care
- at least 14 years old
- with a disease for which at least one biochemical and / or physical parameter disease marker is well established .
Exclusion
- Patients -
- with insufficient knowledge of the German
- with cognitive impairment to a degree that consent, and participation would be impossible
- in an end-of-life situation
- with a disease for which no biochemical and / or physical parameter disease marker is well established
Key Trial Info
Start Date :
January 1 2024
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
December 31 2025
Estimated Enrollment :
20 Patients enrolled
Trial Details
Trial ID
NCT05413278
Start Date
January 1 2024
End Date
December 31 2025
Last Update
August 6 2024
Active Locations (8)
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1
University Childrens Hospital Vienna
Vienna, Austria, 1090
2
University Hospital Vienna
Vienna, Austria, 1090
3
University Childrens Hospital Basel
Basel, Switzerland
4
University Hospital Basel
Basel, Switzerland