Status:

UNKNOWN

Advanced Cancer Patients' and Their Primary Caregivers' Willingness to Communicate About Advance Care Planning (ACP)

Lead Sponsor:

Jules Bordet Institute

Collaborating Sponsors:

Fonds Gaston Ithier

Université Libre de Bruxelles

Conditions:

Advanced Cancer

Eligibility:

All Genders

18-100 years

Brief Summary

Advanced care planning (ACP) is a major component of end-of-life care. Advanced care planning aims to (1) establish treatment and care options in the event that continuing cancer treatment is more ris...

Detailed Description

Advanced care planning (ACP) is a major component of end-of-life care. Advanced care planning aims to (1) establish treatment and care options in the event that continuing cancer treatment is more ris...

Eligibility Criteria

Inclusion

  • The general eligibility criteria for patients are as follows:
  • Be competent (defined according to Appelbaum et al. (1988) as the ability to understand, reason and communicate)
  • Speak French
  • Be over 18 years of age
  • Have given written informed consent to participate in the study
  • In addition to these general criteria, specific eligibility criteria are defined for patients referred for medical oncology, hematology, surgery or radiotherapy.
  • Specific criteria for patients attending a medical oncology consultation:
  • To have metastatic cancer or cancer with locoregional extension
  • and be involved in a new line of treatment (ongoing or planned), following resistance of the disease to at least one first treatment;
  • and/or have been diagnosed with brain metastasis.
  • Specific criteria for patients attending a hematology oncology consultation:
  • To have a hemato-oncological condition
  • and be involved in a first line of non-curative therapy (e.g. myeloma, acute myeloid leukemia on Vidaza-Venetoclax);
  • and/or be involved in a new line of treatment (ongoing or planned), following a relapse of the disease after at least one first line of treatment.
  • Specific criteria for patients attending a surgery consultation:
  • To have metastatic cancer or cancer with locoregional extension
  • and be involved in the scheduling of a major surgery.
  • Specific criteria for patients attending a radiation therapy consultation:
  • To have metastatic cancer or cancer with locoregional extension
  • and be involved in a radiotherapy treatment involving more than one session
  • Exclusion Criteria for patients :
  • Not being competent (defined according to Appelbaum et al. (1988) as the ability to understand, reason and communicate)
  • Have a poor command of the French language
  • Already have a therapeutic limitation status, limited to supportive care (BSC status).
  • Inclusion Criteria for primary Caregivers :
  • The eligibility criteria for primary caregivers are as follows:
  • Have been identified by the patient as the person who supports them the most with their cancer condition
  • Be competent
  • Speak French
  • Be over 18 years of age
  • Have given written informed consent to participate in the study
  • Inclusion Criteria for physicians :
  • Have been designated by the patient as the physician with whom they wish to make major decisions in terms of treatment planning and/or therapeutic limitations
  • Speak French
  • Have given written informed consent to participate in the study

Exclusion

    Key Trial Info

    Start Date :

    October 4 2021

    Trial Type :

    OBSERVATIONAL

    Allocation :

    ESTIMATED

    End Date :

    October 4 2024

    Estimated Enrollment :

    600 Patients enrolled

    Trial Details

    Trial ID

    NCT05426330

    Start Date

    October 4 2021

    End Date

    October 4 2024

    Last Update

    June 22 2022

    Active Locations (1)

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    Page 1 of 1 (1 locations)

    1

    Institut Jules Bordet

    Brussels, Belgium