Status:
COMPLETED
Equitable Implementation of Cascade Screening for Familial Hypercholesterolemia
Lead Sponsor:
Northwestern University
Collaborating Sponsors:
Family Heart Foundation
University of Pennsylvania
Conditions:
Familial Hypercholesterolemia
Eligibility:
All Genders
18+ years
Brief Summary
Design, refine, and pilot the two implementation approaches using behavioral economics and then seek further feedback prior to the proposed clinical trial, consistent with these recommendations. Aim ...
Detailed Description
Aim 1. Conduct interviews with patients with high cholesterol and/or FH and clinicians to identify common barriers and facilitators for individuals to engage in cascade screening. These activities wil...
Eligibility Criteria
Inclusion
- Patients with high cholesterol and/or FH (i.e., probands; Aim 1 Interviews, Aim 2 Pilot Testing Strategies, Aim 2 Interviews). Adults aged 18 and older with clinically diagnosed FH and/or high cholesterol who are treated within Penn Medicine.
- Family Members (Aim 2 Pilot Testing Strategies, Aim 2 Interviews). Adults aged 18 and older who have a family member who has been identified as a patient with high cholesterol and/or FH who is treated within Penn Medicine (i.e., family members of probands).
Exclusion
- \- none
Key Trial Info
Start Date :
July 20 2022
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
June 20 2023
Estimated Enrollment :
22 Patients enrolled
Trial Details
Trial ID
NCT05430191
Start Date
July 20 2022
End Date
June 20 2023
Last Update
September 29 2023
Active Locations (1)
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1
University of Pennsylvania, Perelman School of Medicine
Philadelphia, Pennsylvania, United States, 19104