Status:
RECRUITING
Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities
Lead Sponsor:
University of North Carolina, Chapel Hill
Collaborating Sponsors:
Patient-Centered Outcomes Research Institute
Conditions:
Intellectual Disability
Eligibility:
All Genders
11-27 years
Phase:
NA
Brief Summary
This study will determine the comparative effectiveness of Go Act, a tailored advocacy curriculum versus Peer parent-directed peer learning for increasing parent activation for parents of youth with i...
Detailed Description
A well-functioning system of care should provide a broad array of services that can support families with a child with complex health care needs. Nonetheless, adolescents and transition age youth with...
Eligibility Criteria
Inclusion
- Parents
- Bringing their adolescent or young adult child (age 11-27), with diagnosed or suspected intellectual or developmental disability, to one of the participating clinics
- Able to attend group sessions
- Able to give informed consent
- Resident of North Carolina Youth
- Being between the ages of 11 and 27
- Having diagnosed or suspected intellectual or developmental disability
- Being present for a visit at one of the study clinics
Exclusion
- Parents
- Having evidence of emergency mental health needs
- Not willing to be recorded
Key Trial Info
Start Date :
August 8 2023
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
March 1 2026
Estimated Enrollment :
404 Patients enrolled
Trial Details
Trial ID
NCT05986305
Start Date
August 8 2023
End Date
March 1 2026
Last Update
June 20 2024
Active Locations (3)
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1
Family Medicine at the Mountain Area Health Education Center
Asheville, North Carolina, United States, 28803
2
The Carolina Institute for Developmental Disabilities
Carrboro, North Carolina, United States, 27510
3
UNC Adult Psychiatry Clinic
Chapel Hill, North Carolina, United States, 27514