Status:

RECRUITING

Lung Transplant READY CF 2: CARING CF Ancillary RCT

Lead Sponsor:

University of Washington

Collaborating Sponsors:

Cystic Fibrosis Foundation

Conditions:

Cystic Fibrosis

Eligibility:

All Genders

18+ years

Phase:

NA

Brief Summary

Lung transplant is an option for treating end-stage lung disease in cystic fibrosis (CF). In the United States, more people with CF and low lung function die each year than undergo lung transplant. Mo...

Detailed Description

Lung transplant is an option for treating end-stage lung disease in cystic fibrosis (CF). In the US, more CF patients with forced expiratory volume in 1 second (FEV1) less than 30% of predicted die ea...

Eligibility Criteria

Inclusion

  • Identified as a caregiver or loved one of an individual with CF enrolled in the Lung Transplant READY CF 2 parent RCT, or
  • An individual with CF enrolled in the Lung Transplant READY CF 2 parent RCT

Exclusion

  • People who are unable to provide informed consent
  • Unable to read or understand English or Spanish to complete surveys or access the website (currently only available in English and Spanish)

Key Trial Info

Start Date :

September 6 2023

Trial Type :

INTERVENTIONAL

Allocation :

ESTIMATED

End Date :

July 31 2027

Estimated Enrollment :

132 Patients enrolled

Trial Details

Trial ID

NCT06032273

Start Date

September 6 2023

End Date

July 31 2027

Last Update

December 6 2024

Active Locations (1)

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Page 1 of 1 (1 locations)

1

University of Washington Medical Center - Montlake

Seattle, Washington, United States, 98195