Status:
UNKNOWN
Exploring Patient Reported Outcomes in Inherited Ichthyosis
Lead Sponsor:
Maastricht University Medical Center
Conditions:
Congenital Ichthyosis
Eligibility:
All Genders
16+ years
Brief Summary
The goal of this observational study is to learn about the presence of extracutaneous manifestations in patients with congenital ichthyosis. The main question it aims to answer is: \- Do patients wi...
Detailed Description
There is only limited knowledge about extracutaneous manifestations in patients with congenital ichthyosis. With this study, the investigators aim to identify extracutaneous manifestations with questi...
Eligibility Criteria
Inclusion
- 16 years and older
- Clinically and genetically confirmed congenital ichthyosis
Exclusion
- \<16 years of age
- Not able to read Dutch
- Not able to fill in questionnaires online or in print
Key Trial Info
Start Date :
September 1 2023
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2024
Estimated Enrollment :
20 Patients enrolled
Trial Details
Trial ID
NCT06123091
Start Date
September 1 2023
End Date
December 1 2024
Last Update
November 8 2023
Active Locations (1)
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1
Maastricht University Medical Centre +
Maastricht, Netherlands, 6229HX