Status:

RECRUITING

Development of Non-Invasive Prenatal Diagnosis for Single Gene Disorders

Lead Sponsor:

Assistance Publique - Hôpitaux de Paris

Conditions:

Invasive PreNatal Diagnosis in a Context of Family History of Single-gene Disorders, Including

Sickle Cell Disease

Eligibility:

FEMALE

18+ years

Brief Summary

Cell-free fetal DNA (cffDNA) is present in the maternal blood from the early first trimester of gestation and makes up 5%-20% of the total circulating cell-free DNA (cfDNA) in maternal plasma. Its pre...

Detailed Description

Since the identification of cffDNA in maternal plasma in 1997, there have been rapid developments in exploiting its presence for prenatal diagnosis and screening. The first proof of principle studies ...

Eligibility Criteria

Inclusion

  • pregnant woman with 9 weeks of amenorrhea or more
  • singleton pregnancy
  • undergoing invasive PND in a context of family history of SGD involving the following genes : HBB, CFTR, FMR1, SMN1, DMPK, DMD, NF1, HTT, F8, F9, GCK, L1CAM, PKHD1, ATP7A or undergoing prenatal counselling in a context of maternal history of diabetes MODY-GCK
  • germinal pathogenic paternal and/or maternal mutations previously identified
  • age 18 years old or over
  • signing an informed consent

Exclusion

  • at risk of another SGD
  • at risk of SGD involving a de novo pathogenic mutation in a previous child
  • woman under legal protection

Key Trial Info

Start Date :

October 23 2024

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

May 1 2027

Estimated Enrollment :

550 Patients enrolled

Trial Details

Trial ID

NCT06147414

Start Date

October 23 2024

End Date

May 1 2027

Last Update

November 7 2024

Active Locations (1)

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Page 1 of 1 (1 locations)

1

Hôpital Cochin, Maternité Port-Royal, service de Gynécologie obstétrique

Paris, France, 75014