Status:
RECRUITING
Hepato-pancreato-biliary Abnormalities in Fibrous Dysplasia of Bone/McCune Albright Syndrome
Lead Sponsor:
Hospices Civils de Lyon
Conditions:
Fibrous Dysplasia of Bone
Eligibility:
All Genders
18-100 years
Brief Summary
Fibrous dysplasia of bone /McCune Albright syndrome (FD/MAS) is a rare bone disease caused by somatic mutations in GNAS gene. This GNAS mutation predisposes to cancers, including breast cancer, thyroi...
Eligibility Criteria
Inclusion
- Adults ≥18 years with polyostotic FD/MAS
- Followed up in the national FD reference center (Lyon) or in a FD French expert center: Angers, Bordeaux, Brest, Caen, Clermont-Ferrand, Lille, Marseille, Montpellier, Nice, Paris, Poitiers, Rennes, Saint-Etienne, Strasbourg.
- who had an hepato-bilio-pancreatic MRI during their follow-up, since January 2002
- No objection to data collection
Exclusion
- Opposition to data collection
Key Trial Info
Start Date :
January 19 2024
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 12 2025
Estimated Enrollment :
545 Patients enrolled
Trial Details
Trial ID
NCT06177327
Start Date
January 19 2024
End Date
December 12 2025
Last Update
February 29 2024
Active Locations (16)
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1
CHU Angers
Angers, France, 49100
2
Groupe Hospitalier Pellegrin - Chu
Bordeaux, France, 33076
3
CHU de Brest - Hôpital de la Cavale Blanche
Brest, France, 29609
4
Chu de Caen Normandie
Caen, France, 14000