Status:
COMPLETED
Parents Reflecting On Hope During Hospice Through Photovoice
Lead Sponsor:
St. Jude Children's Research Hospital
Conditions:
Bereavement
Eligibility:
All Genders
18+ years
Brief Summary
In this study, researchers will use Photovoice to learn about how bereaved parents felt and thought about hope when their children were on hospice. 'Photovoice' is a research method that uses particip...
Detailed Description
Using a prospective qualitative design, we will enroll parents of children who died on hospice 6-24 months prior. Parents who opt to participate in the study will be asked to review photographs they h...
Eligibility Criteria
Inclusion
- Participants must be the parent of a child who:
- Received any form of care from a clinician at St. Jude, as documented in the electronic medical record, AND
- Was enrolled on hospice at the time of death, AND
- Died at least 6 months prior to enrollment, but no more than 24 months prior to enrollment.
- Participants must also:
- Be ≥ 18 years of age or legally emancipated, AND
- Be English-speaking or Spanish-speaking.
Exclusion
- Insufficient comfort or fluency with either English or Spanish language.
Key Trial Info
Start Date :
January 30 2024
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
October 27 2025
Estimated Enrollment :
20 Patients enrolled
Trial Details
Trial ID
NCT06187636
Start Date
January 30 2024
End Date
October 27 2025
Last Update
November 5 2025
Active Locations (1)
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1
St. Jude Children's Research Hospital
Memphis, Tennessee, United States, 38105