Status:

ACTIVE_NOT_RECRUITING

Safety, Tolerability, PK, and PD Study of PGN-EDODM1 in Participants With Myotonic Dystrophy Type 1

Lead Sponsor:

PepGen Inc

Conditions:

Myotonic Dystrophy 1

Eligibility:

All Genders

18-60 years

Phase:

PHASE1

Brief Summary

The primary purpose of the study is to evaluate the safety and tolerability of single intravenous (IV) doses of PGN-EDODM1 administered to participants with Myotonic Dystrophy Type 1 (DM1). The study...

Eligibility Criteria

Inclusion

  • Confirmed diagnosis of DM1, as defined as having a repeat sequence in the DMPK gene with at least 100 CTG repeats
  • Medical Research Council (MRC) score of ≥ Grade 4- in bilateral tibialis anterior (TA) muscles (the ability to move through full range of motion and hold against at least moderate pressure from the examiner)
  • Presence of myotonia

Exclusion

  • Congenital DM1
  • Known history or presence of any clinically significant conditions that may interfere with study safety assessments
  • Abnormal laboratory tests at screening
  • Medications specific for the treatment of myotonia within 2 weeks prior to screening
  • Percent predicted forced vital capacity (FVC) \<40%
  • Note: Other inclusion and exclusion criteria may apply.

Key Trial Info

Start Date :

December 12 2023

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

October 1 2025

Estimated Enrollment :

24 Patients enrolled

Trial Details

Trial ID

NCT06204809

Start Date

December 12 2023

End Date

October 1 2025

Last Update

October 6 2025

Active Locations (12)

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Page 1 of 3 (12 locations)

1

UCI Center for Clinical Research

Irvine, California, United States, 92697

2

Stanford University

Palo Alto, California, United States, 94304

3

Rare Disease Research

Atlanta, Georgia, United States, 30329

4

University of Kansas Medical Center

Fairway, Kansas, United States, 66205