Status:
RECRUITING
Neurofibromatosis Type 1 Tumor Early Detection Study
Lead Sponsor:
David Miller
Conditions:
Neurofibromatosis Type 1
Neurofibromatosis 1
Eligibility:
All Genders
18+ years
Brief Summary
The goal of this observational study is to determine if a liquid biopsy (i.e. blood test) is an effective clinical tool for monitoring the development of malignant peripheral nerve sheath tumor (MPNST...
Eligibility Criteria
Inclusion
- 18 years and older (adults only)
- Neurofibromatosis Type 1 (NF1) diagnosis (2021 Revised Diagnostic Criteria, PMID: 34012067)
- History of plexiform neurofibroma (PN)
- Able to read and understand English or Spanish
- Live in the USA
Exclusion
- Are children (younger than 18 years old)
- Do not have NF1
- Have no evidence of PN
- Are not able to read and understand English or Spanish
Key Trial Info
Start Date :
August 7 2024
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
July 1 2030
Estimated Enrollment :
1000 Patients enrolled
Trial Details
Trial ID
NCT06515860
Start Date
August 7 2024
End Date
July 1 2030
Last Update
January 9 2026
Active Locations (1)
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1
Boston Children's Hospital
Boston, Massachusetts, United States, 02115