Status:
RECRUITING
Disease Burden and Living Situation of Patients With Facioscapulohumeral Muscular Dystrophy
Lead Sponsor:
Xi'an Jiaotong University
Collaborating Sponsors:
Chinese Organization for Rare Disorders
First Affiliated Hospital of Fujian Medical University
Conditions:
Muscular Dystrophy, Facioscapulohumeral
Eligibility:
All Genders
Brief Summary
The goal of this observational study is to learn the patient journey, disease burden, living situation, quality of life and etc. in patients with Facioscapulohumeral Muscular Dystrophy in all sex/gend...
Detailed Description
Study Objective This observational study aims to comprehensively understand the patient journey, disease burden, living situation, and quality of life in individuals diagnosed with Facioscapulohumeral...
Eligibility Criteria
Inclusion
- Having been diagnosed as Facioscapulohumeral Muscular Dystrophy
Exclusion
- No
Key Trial Info
Start Date :
March 1 2024
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
July 1 2025
Estimated Enrollment :
300 Patients enrolled
Trial Details
Trial ID
NCT06517498
Start Date
March 1 2024
End Date
July 1 2025
Last Update
July 24 2024
Active Locations (1)
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1
Health Science Center of Xi'an Jiaotong University
Xi'an, Shaanxi, China, 710049