Status:
NOT_YET_RECRUITING
Applying the Pathways and Resources for Engagement and Participation Protocol Among People With Muscles Dystrophies
Lead Sponsor:
University of Haifa
Collaborating Sponsors:
McGill University
Conditions:
Duchenne Muscular Dystrophy
Becker Muscular Dystrophy
Eligibility:
MALE
14-30 years
Phase:
NA
Brief Summary
Taking part in community activities is essential for health and well-being. Yet, it is highly restricted for young people with Duchenne and Becker Muscular Dystrophies (DBMD), especially as they grow ...
Detailed Description
Duchenne-Becker muscular dystrophy (DBMD) is an X-linked recessive disorder affecting 1 in 5,000 to 1 in 6,000 live male births, resulting in difficulties with movement and multi-system implications. ...
Eligibility Criteria
Inclusion
- diagnosed with DBMD
- aged 14-30 years
- from any sector of Israeli society.
Exclusion
- have previously received the PREP intervention
Key Trial Info
Start Date :
August 1 2024
Trial Type :
INTERVENTIONAL
Allocation :
ESTIMATED
End Date :
February 1 2025
Estimated Enrollment :
6 Patients enrolled
Trial Details
Trial ID
NCT06540365
Start Date
August 1 2024
End Date
February 1 2025
Last Update
August 6 2024
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