Status:

RECRUITING

Evaluation of the Reproducibility of a Fatigability Test Fitted to Patients With Spinal Muscular Atrophy

Lead Sponsor:

Centre Hospitalier Universitaire de Saint Etienne

Conditions:

Spinal Amyotrophy

Infantile Spinal Muscular Atrophy

Eligibility:

All Genders

6+ years

Phase:

NA

Brief Summary

Spinal muscular atrophy (SMA) is an autosomal recessive neuromuscular disease caused by the degeneration of motor neurons in the anterior horn of the spinal cord, due to the absence of the SMN1 gene a...

Eligibility Criteria

Inclusion

  • Genetically confirmed spinal muscular atrophy
  • Age ≥ 6 years
  • No orthopaedic surgery in the 6 months prior to inclusion
  • Informed consent signed by the patient(s) or parent(s)/legal guardian(s) and assent of the patient
  • Affiliated or beneficiary of a health insurance scheme (for inclusion in France)

Exclusion

  • Other condition that may significantly interfere with the assessment of the SMA and which is clearly unrelated to the disease
  • Other associated neurological disease
  • Joint deformities that prevent correct and comfortable positioning with the various different measuring devices (thumb-index clamp, handgrip and QIF-test)
  • Contraindication to transcranial magnetic stimulation

Key Trial Info

Start Date :

December 6 2024

Trial Type :

INTERVENTIONAL

Allocation :

ESTIMATED

End Date :

October 1 2026

Estimated Enrollment :

80 Patients enrolled

Trial Details

Trial ID

NCT06562283

Start Date

December 6 2024

End Date

October 1 2026

Last Update

December 19 2024

Active Locations (4)

Enter a location and click search to find clinical trials sorted by distance.

Page 1 of 1 (4 locations)

1

HCL - Hôpital Croix Rousse

Lyon, France

2

HFME - Hospices Civils de Lyon

Lyon, France

3

Aphp - Hopital Pitie Salpetriere

Paris, France

4

Unités de Myologie et de Médecine du Sport

Saint-Etienne, France, 42055