Status:

RECRUITING

Clinical and Functional Assessment of Patients With Inherited Non-Duchenne Myopathies in Sohag University Hospital

Lead Sponsor:

Sohag University

Conditions:

Inherited Non-Duchenne Myopathies

Eligibility:

All Genders

2-18 years

Brief Summary

Muscular Myopathies are a heterogenous group of inherited muscular disorders characterized by progressive muscle weakness. Historically, these disorders are difficult to treat. In the last three decad...

Detailed Description

Type of the study: This study will be a prospective, observational study Place of the study: Pediatric Neurology Clinic and Genetics Unit, Department of pediatrics, Sohag University Hospital. , Soh...

Eligibility Criteria

Inclusion

  • • Age between 2 and 18 years
  • Confirmed diagnosis of non-DMD based on clinical features, laboratory investigations, and genetic testing.
  • Patients and their parents agree to participate in the study.

Exclusion

  • • Children with a confirmed diagnosis of DMD
  • Children with incomplete medical records or unavailable clinical data.
  • Children with endocrinal ,nutritional critical care and inflammatory myopathies.
  • Other neuromuscular disorders that affect AHC or nerves as SMA, congenital myasthenia Gravis and neuropathic.
  • Other acquired neuromuscular disorders as Guillain Barre syndrome and toxic myopathy.
  • Patients and their parents refuse to participate in the study.

Key Trial Info

Start Date :

August 1 2024

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

August 1 2025

Estimated Enrollment :

30 Patients enrolled

Trial Details

Trial ID

NCT06574919

Start Date

August 1 2024

End Date

August 1 2025

Last Update

August 28 2024

Active Locations (3)

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Page 1 of 1 (3 locations)

1

Sohag university Hospital

Sohag, Egypt, Sohag

2

Sohag University

Sohag, Egypt, sohag

3

Sohag University Hospital

Sohag, Egypt