Status:
NOT_YET_RECRUITING
Phenotypic and Etiological Characterization of Susac Syndrome
Lead Sponsor:
Assistance Publique - Hôpitaux de Paris
Conditions:
Susac Syndrome
Eligibility:
All Genders
18+ years
Brief Summary
SUSAC's Syndrome (SS) is characterized by the clinical triad of encephalopathy, hearing loss, and retinal artery branch occlusions. Since the first description of SS in 1979, hundreds of patients with...
Detailed Description
Susac's Syndrome (SS) is characterized by the clinical triad of encephalopathy, hearing loss, and retinal artery branch occlusions. Since the first description of SS in 1979, hundreds of patients with...
Eligibility Criteria
Inclusion
- Patient over 18 years of age
- Patient presenting with at least two of the signs of the clinical triad: encephalopathy, cochlear damage authenticated by an audiogram (uni- or bilateral, predominantly in the middle or low frequencies), retinal artery occlusion assessed by fundoscopy or fluorescein retinal angiography.
Exclusion
- Patient having been individually informed and objecting to the use of his/her data
- Patient under legal protection (guardianship or curatorship)
- Differential diagnosis established: multiple sclerosis, mitochondriopathy, CADASIL, primary tumour of the central nervous system, Lyme disease.
Key Trial Info
Start Date :
March 30 2025
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
March 30 2038
Estimated Enrollment :
180 Patients enrolled
Trial Details
Trial ID
NCT06881368
Start Date
March 30 2025
End Date
March 30 2038
Last Update
March 18 2025
Active Locations (1)
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1
Hôpital Bichat
Paris, France, 75018