Status:

RECRUITING

FITting Non-invasive Tests in Lynch Syndrome Surveillance

Lead Sponsor:

University of Chicago

Collaborating Sponsors:

National Cancer Institute (NCI)

Columbia University

Conditions:

Colorectal Cancer

Eligibility:

All Genders

20-75 years

Brief Summary

The purpose of this clinical study is to evaluate the accuracy of the fecal immunochemical test (FIT) in comparison to colonoscopy in patients with Lynch Syndrome (LS) who are undergoing colonoscopy s...

Detailed Description

Lynch syndrome (LS), the most common inherited cause of colorectal cancer (CRC) affecting about 1.2 million Americans. Colonoscopy starting early in adulthood and repeated yearly or biennially is the ...

Eligibility Criteria

Inclusion

  • Have a diagnosis of LS with a confirmed pathogenic variant in MLH1, MSH2, MSH6, PMS2 or EPCAM genes.
  • Aged 20 - 75 years (for those with pathogenic variants in MLH1, MSH2, and EPCAM)
  • Aged 30 - 75 years (for those with pathogenic variants in PMS2 or MSH6).
  • Have an upcoming standard of care (SOC) colonoscopy appointment in line with standard LS surveillance guidelines (NCCN).
  • Willing to sign informed consent, collect stools samples and complete surveys

Exclusion

  • Individuals who have not proceeded with genetic testing and therefore are not known to have LS, despite family history and/or criteria for testing.
  • Individuals who have previously undergone a subtotal or total colectomy.
  • Newly diagnosed Lynch Syndrome patients \< 20 years old with a pathogenic variant in MLH1, MSH2 or EPCAM, MSH6 or PMS2.
  • Newly diagnosed Lynch Syndrome patients \< 30 years old with a pathogenic variant in MSH6 or PMS2.
  • Individuals who are pregnant.
  • Individuals with inflammatory bowel disease or active malignancy.
  • Individuals not willing or able to sign informed consent.

Key Trial Info

Start Date :

July 10 2025

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

July 1 2029

Estimated Enrollment :

400 Patients enrolled

Trial Details

Trial ID

NCT06898996

Start Date

July 10 2025

End Date

July 1 2029

Last Update

September 8 2025

Active Locations (3)

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Page 1 of 1 (3 locations)

1

The University of Chicago Medical Center

Chicago, Illinois, United States, 60639

2

University of Michigan

Ann Arbor, Michigan, United States, 48109

3

Columbia University

New York, New York, United States, 10032