Status:
ENROLLING_BY_INVITATION
Deep Brain Stimulation (DBS) MatchMaker
Lead Sponsor:
Boston Children's Hospital
Conditions:
TOR1A
PANK2
Eligibility:
All Genders
Brief Summary
DBS Matchmaker (https://www.dbsmatchmaker.com) is a platform designed to connect clinicians worldwide who are treating rare movement disorders with deep brain stimulation (DBS). It facilitates global ...
Detailed Description
Deep brain stimulation (DBS) is an effective treatment for childhood-onset dystonia and other hyperkinetic disorders, with emerging evidence supporting its use in an expanding range of monogenic movem...
Eligibility Criteria
Inclusion
- Individuals of all ages with genetic movement disorders, who are undergoing or being considered for DBS treatment.
Exclusion
- Individuals who have not undergone DBS treatment.
Key Trial Info
Start Date :
December 1 2024
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2030
Estimated Enrollment :
500 Patients enrolled
Trial Details
Trial ID
NCT06912841
Start Date
December 1 2024
End Date
December 1 2030
Last Update
April 6 2025
Active Locations (1)
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1
Boston Children's Hospital
Boston, Massachusetts, United States, 02115