Status:
RECRUITING
Research Accelerated by You Lupus Registry
Lead Sponsor:
Lupus Foundation of America
Conditions:
Systemic Lupus Erythematosus (SLE)
Lupus Nephritis (LN)
Eligibility:
All Genders
Brief Summary
The Lupus Foundation of America (LFA) Research Accelerated by You (RAY) Registry is an ongoing, voluntary, longitudinal study gathers data from adults with lupus and legally authorized representatives...
Eligibility Criteria
Inclusion
- For adults with lupus, the individual who completes the Registry:
- is 18 years of age or older
- has a self-reported diagnosis of lupus by a physician or health care provider
- is willing and able to provide informed consent
- is able to read and understand English sufficiently to complete the survey questions
- has access to a computer with an internet connection
- For children under 18 with lupus, the individual who completes the Registry is:
- 18 years of age or older
- the parent/legal guardian/legally authorized representative of a child under 18 years of age that has a diagnosis of lupus by a physician or health care provider
- willing and able to provide consent for the child under 18 years of age and to obtain assent from the child between 7-17 years of age
- able to access a computer with an internet connection
- able to read and understand English sufficiently to complete the survey questions
- For adults with lupus unable to provide consent, the individual who completes the Registry is:
- 18 years of age or older
- the legally authorized representative of an adult 18 or older who is unable to provide consent and has a diagnosis of lupus by a physician or health care provider
- willing and able to provide consent for the adult with lupus
- able to access a computer with an internet connection
- able to read and understand English sufficiently to complete the survey questions
Exclusion
- \-
Key Trial Info
Start Date :
October 1 2020
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 31 2050
Estimated Enrollment :
10000 Patients enrolled
Trial Details
Trial ID
NCT06927219
Start Date
October 1 2020
End Date
December 31 2050
Last Update
April 15 2025
Active Locations (1)
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1
Lupus Foundation of America
Washington D.C., District of Columbia, United States, 20037