Status:
RECRUITING
Natural History of Oculo-Pharyngeal Muscular Dystrophy (OPMD) - Israel National OPMD Registry
Lead Sponsor:
Sheba Medical Center
Collaborating Sponsors:
The non-profit organization for promotion of health and cure of OPMD
Conditions:
Oculopharyngeal Muscular Dystrophy (OPMD)
Eligibility:
All Genders
18+ years
Brief Summary
The goal of this open prospective multi-disciplinary observational study of patients with OPMD at various stages of clinical manifestations is to explore the natural history of the disease in the Isra...
Detailed Description
The the following procedures will be performed by a multidisciplinary team: Neurological and neurocognitive examination; Clinical assessment of of swallowing and severity of dysphagia; Clinical asses...
Eligibility Criteria
Inclusion
- Patients with clinical diagnosis of OPMD or patients with signs /symptoms suggestive of OPMD
Exclusion
- Age \<18 years and Pregnancy
Key Trial Info
Start Date :
February 1 2022
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
January 1 2030
Estimated Enrollment :
300 Patients enrolled
Trial Details
Trial ID
NCT07146256
Start Date
February 1 2022
End Date
January 1 2030
Last Update
August 28 2025
Active Locations (1)
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1
Sheba Medical Center
Ramat Gan, Israel