Status:

NOT_YET_RECRUITING

Impact of Ehlers-Danlos Syndrome on Gynaecological Health

Lead Sponsor:

University Hospital, Rouen

Conditions:

Ehlers-Danlos Syndrome (EDS)

Eligibility:

FEMALE

18-50 years

Brief Summary

Dysmenorrhea is a common problem in gynaecology, significantly impacting patients' quality of life. Ehlers-Danlos syndrome (EDS) is associated with joint hypermobility, tissue fragility and chronic pa...

Detailed Description

Patients with SED report a high prevalence of gynaecological disorders, including severe dysmenorrhoea, menorrhagia and dyspareunia. Chronic pelvic pain and pelvic floor disorders are also common, imp...

Eligibility Criteria

Inclusion

  • Women aged 18 or over.
  • Willing to participate voluntarily in the study via an online questionnaire.
  • Of childbearing age.
  • Reporting a diagnosis of EDS (all types) or not having EDS (control group) and being part of a database of healthy volunteers.

Exclusion

  • Minors (\< 18 years old).
  • Menopausal women
  • People who do not understand French well enough to complete the questionnaire.
  • Uncertain diagnosis of EDS (exclusion of participants who suspect EDS but without medical confirmation).

Key Trial Info

Start Date :

September 1 2025

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

February 1 2026

Estimated Enrollment :

156 Patients enrolled

Trial Details

Trial ID

NCT07151274

Start Date

September 1 2025

End Date

February 1 2026

Last Update

September 3 2025

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