Status:

NOT_YET_RECRUITING

Designing Care Management for Hospice Transitions for Persons Living With Advanced Dementia

Lead Sponsor:

New York University

Collaborating Sponsors:

Visiting Nurse Service of New York

Conditions:

Alzheimer Disease and Related Dementias

Eligibility:

All Genders

18+ years

Phase:

NA

Brief Summary

This study will test a care management intervention to guide end-of-life care and hospice transitions for persons with dementia and their care partners receiving home healthcare and ascertain feasibil...

Detailed Description

This study has the following design: Unblinded, Non-Randomized, Single-Arm Intervention Study (Feasibility Trial). In this study, the team will pilot test the care management checklist intervention wi...

Eligibility Criteria

Inclusion

  • Inclusion:
  • Care Partners and PLWD Dyad:
  • Care partners of PLWD who have a diagnosis of moderate to severe dementia.
  • Able to provide informed consent
  • HHC Professionals:
  • Care Managers and Field Nurses:
  • Care managers who regularly engage hospice transitions with care partners of PLWD
  • Age 18 or older
  • Medical Providers:
  • Medical providers (e.g., physicians and nurse practitioners) who refer patients for hospice enrollment.
  • Age 18 or older
  • HHC Administrators:
  • Home healthcare administrators who work with the Certified Home Health Agency or the Advanced Illness Management Program that refers patients to hospice care
  • Age 18 or older
  • Exclusion
  • Care Partner and PLWD Dyad
  • Under age 18
  • Care partners who are caring for PLWD with Mild Cognitive Impairment
  • PLWD with Mild Cognitive Impairment
  • HHC Professionals: Care Managers, Medical Providers, Administrators
  • 1\. Do not have experience managing hospice transitions for PLWD

Exclusion

    Key Trial Info

    Start Date :

    October 1 2025

    Trial Type :

    INTERVENTIONAL

    Allocation :

    ESTIMATED

    End Date :

    July 31 2028

    Estimated Enrollment :

    96 Patients enrolled

    Trial Details

    Trial ID

    NCT07182357

    Start Date

    October 1 2025

    End Date

    July 31 2028

    Last Update

    September 19 2025

    Active Locations (1)

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    NYU Rory Meyers College of Nursing and VNS Health

    New York, New York, United States, 10010