Status:
RECRUITING
Evaluate the Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System
Lead Sponsor:
Medstar Health Research Institute
Conditions:
Spinal Muscular Atrophy (SMA)
Eligibility:
All Genders
18+ years
Brief Summary
Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.
Eligibility Criteria
Inclusion
- SMA diagnosis, age greater than or equal to 18 years
Exclusion
- Deceased
Key Trial Info
Start Date :
October 10 2025
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 30 2026
Estimated Enrollment :
200 Patients enrolled
Trial Details
Trial ID
NCT07223489
Start Date
October 10 2025
End Date
December 30 2026
Last Update
October 31 2025
Active Locations (1)
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1
MedStar Health Research Institute
Washinton, District of Columbia, United States, 20010